Please read this: It might just save your child’s life

Max

This is a photo of gorgeous Max. But, it is one of the last photos that his mum Caroline has of him as Max is no longer with us. He is now playing with the other angels in heaven…

Max Earley was just 2 years old when he passed away. He was vomiting daily and losing weight as a result. He could not tell anyone of his pain and suffering. He changed from a bright, happy child to an irritable and sad little boy.

His doctor misdiagnosed his symptoms and behaviour more than once for tummy problems. He was sent to 2 hospitals for further tests and scans. He had a CT scan, but it also was misread and never followed up. Max suffered in his last days in hospital as he was being given the wrong treatment.

I will not give any further details out of respect to his mum Caroline who is my friend and who is still grieving. I will just say that no mother deserves to go through what she had to. Max was her only child. What is even more heart-breaking is that due to her age, she does not know if she can have any more children. She blames herself for her loss and said that she should have done more. But if the consultants and experts got it so wrong, then how could she have known?

So why was Max so ill? He had a brain tumour. It is the largest cancer killer of children and young people in the UK. And even though there is a lot of work going into research and raising awareness, the mortality rate still remains as high as ever.

If Max’s story helps just one child then his death will not have been in vain.

Therefore, I beseech you to read below the symptoms for children with possible brain tumours. This list has been drawn up by a campaign called Headsmart which is part of The Brain Tumour Charity. If you are unsure about any of these symptoms, then go and see your GP, ask for a referal, get a second opinion, and make sure you request a CT or an MRI scan (as these images are the only way to check for a tumour).

The list of symptoms can also be found at http://www.headsmart.org.uk/

Under 5s – Preschool

Symptoms include:

5-11 – Children

Symptoms include:

12-18 Young People

Symptoms include:

Additional symptoms to be aware of:

Please share this information with as many people as you can. It is so important that we spread awareness and help others in similar situations. This is a terrible disease and the only way we can save lives is by being aware and getting treatment early.

____________________

As some of you may remember, I was supposed to climb Mount Snowdon in April to raise money for The Brain Tumour Charity. We had to postpone this due to the weather conditions. We will now be climbing on June 16th. I am dedicating my climb in memory of Max who would have been 3 years old next week.

Thank you so much to those of you who have already donated to this worthwhile cause. For those of you who would like to donate please go to my page http://www.justgiving.com/Amisha-Thobhani

R.I.P. Max. Gone too soon, but always loved and never forgotten.

xxx

32 thoughts on “Please read this: It might just save your child’s life

  1. Thanks for this post. My friend’s little boy died just before his second birthday from neuroblastoma – they went throw hell. Such a tragedy for both of our friends and their families x #PoCoLo

  2. Inspiring.
    Why do we complain about small and irrelevant things in life when people are coping with such unimaginable tragedies in their life. As a practicing GP, this has been a lesson to me.
    Thank you.

    • Wow, thank you so much for your comment. We are blessed, and it is unfortunate that it sometimes takes a sad story like this to make us realise the fact. Make the most of your life, and at the same time let’s all try and help raise more awareness together.

  3. I am so sorry to hear of your friends loss, it’s heartbreaking. I would never have thought of these as symptoms of a brain tumour. Such an important thing to know. Thank you so much for linking to PoCoLo x

    • I know it is such a sad story Vic. A lot of people do not know of these symptoms, even doctors, and yet it is the biggest cancer killer in children! Thanks for helping me spread the awareness on twitter. Together we can make a difference!

  4. It is very thoughtful of you to write this post so that more people are aware of brain tumours. Very sad to learn the loss of your friend’s son. We cannot stop whatever is already written in our destiny. We pray to God to give her strength and courage for this tragic loss.

  5. Just found you on Blow Your Own Blog-Horn .So heartbreaking to read .Thank you for raising awareness .Our thoughts are with your friend xx

    • I know, I cannot even begin to imagine what it must be like to lose a child, let alone in these horrible circumstances. Words are not enough, but we can all be there for her.

    • Thank you for taking the time to read this. It would be great if you could share this with any other parents that you know. I will pass on your comments to Caroline.

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