This is a photo of gorgeous Max Earley.
But, it is one of the last photos that his mum Caroline has of him as Max is no longer with us. He is now playing with the other angels in heaven…
Max Earley was just 2 years old when he passed away. He was vomiting daily and losing weight as a result. He could not tell anyone of his pain and suffering. He changed from a bright, happy child to an irritable and sad little boy.
His doctor misdiagnosed his symptoms and behaviour more than once for tummy problems. He was sent to 2 hospitals for further tests and scans. He had a CT scan, but it also was misread and never followed up. Max suffered in his last days in hospital as he was being given the wrong treatment.
I will not give any further details out of respect to his mum Caroline who is my friend and who is still grieving. I will just say that no mother deserves to go through what she had to. Max was her only child. What is even more heart-breaking is that due to her age, she does not know if she can have any more children. She blames herself for her loss and said that she should have done more. But if the consultants and experts got it so wrong, then how could she have known?
So why was Max so ill? He had a brain tumour. It is the largest cancer killer of children and young people in the UK. And even though there is a lot of work going into research and raising awareness, the mortality rate still remains as high as ever.
If Max’s story helps just one child then his death will not have been in vain.
Therefore, I beseech you to read below the symptoms for children with possible brain tumours. This list has been drawn up by a campaign called Headsmart which is part of The Brain Tumour Charity. If you are unsure about any of these symptoms, then go and see your GP, ask for a referal, get a second opinion, and make sure you request a CT or an MRI scan (as these images are the only way to check for a tumour).
The list of symptoms can also be found at http://www.headsmart.org.uk/
Under 5s – Preschool
Symptoms include:
- Persistent / recurrent vomiting
- Abnormal balance / walking / co-ordination
- Abnormal eye movements
- Behaviour change, particularly lethargy
- Fits or seizures (not with a fever)
- Abnormal head position such as wry neck, head tilt or stiff neck
5-11 – Children
Symptoms include:
- Persistent / recurrent vomiting
- Persistent / recurrent headache
- Abnormal balance / walking / co-ordination
- Abnormal eye movements
- Blurred or double vision
- Behaviour change
- Fits or seizures
- Abnormal head position such as wry neck, head tilt or stiff neck
12-18 Young People
Symptoms include:
- Persistent / recurrent vomiting
- Persistent / recurrent headache
- Abnormal eye movements
- Blurred or double vision
- Abnormal balance / walking / co-ordination
- Behaviour change
- Fits or seizures
- Delayed or arrested puberty
Additional symptoms to be aware of:
Please share this information with as many people as you can. It is so important that we spread awareness and help others in similar situations. This is a terrible disease and the only way we can save lives is by being aware and getting treatment early.
____________________
As some of you may remember, I was supposed to climb Mount Snowdon in April to raise money for The Brain Tumour Charity. We had to postpone this due to the weather conditions. We will now be climbing on June 16th. I am dedicating my climb in memory of Max who would have been 3 years old next week.
Thank you so much to those of you who have already donated to this worthwhile cause. For those of you who would like to donate please go to my page http://www.justgiving.com/Amisha-Thobhani
R.I.P. Max. Gone too soon, but always loved and never forgotten.
xxx
Thank you for this post x
LikeLike
Thank you Claire. It is a privilege to have you stop by.
LikeLike
I am sorry for your friends loss 😦 thanks for all the information, it’s great that you are raising awareness.
LikeLike
Thank you for your kind words. It really is such a scary disease and a real tragedy. The more we can spread the word the better.
LikeLike
Thanks for this post. My friend’s little boy died just before his second birthday from neuroblastoma – they went throw hell. Such a tragedy for both of our friends and their families x #PoCoLo
LikeLike
I am so sorry for your friend. It is the worst thing to lose a child and it must be just awful. May god help them to be strong and may his soul rest in peace.
LikeLike
Thanks, he’s in good company and not in any pain. Makes you so thankful for what you have yourself x
LikeLike
Couldn’t have put it better myself. Xxx
LikeLike
So sorry for your friends loss!!
It is so good that you are raising awareness!!
LikeLike
Thank you. Really hope that we can help others in the same situation so that it does not happen again.
LikeLike
How terribly sad, I hope this helps someone x
LikeLike
I know, life is just so unfair. I really hope it makes a difference to somebody’s life too.
LikeLike
What a tragedy. Thank you for raising the awarness of this illness. RIP, little angel.
LikeLike
Thank you for stopping by and reading. Help spread the word so that others do not have to suffer too.
LikeLike
I’m so sorry for your friends loss. Thank you for raising awareness.
LikeLike
Thank you Sara for taking the time to stop by and comment.
LikeLike
Inspiring.
Why do we complain about small and irrelevant things in life when people are coping with such unimaginable tragedies in their life. As a practicing GP, this has been a lesson to me.
Thank you.
LikeLike
Wow, thank you so much for your comment. We are blessed, and it is unfortunate that it sometimes takes a sad story like this to make us realise the fact. Make the most of your life, and at the same time let’s all try and help raise more awareness together.
LikeLike
I am so sorry to hear of your friends loss, it’s heartbreaking. I would never have thought of these as symptoms of a brain tumour. Such an important thing to know. Thank you so much for linking to PoCoLo x
LikeLike
I know it is such a sad story Vic. A lot of people do not know of these symptoms, even doctors, and yet it is the biggest cancer killer in children! Thanks for helping me spread the awareness on twitter. Together we can make a difference!
LikeLike
Thank you for raising awareness – such a heartbreaking story. x
LikeLike
I know, it really is sad. Thank you for stopping by to comment.
LikeLike
It is very thoughtful of you to write this post so that more people are aware of brain tumours. Very sad to learn the loss of your friend’s son. We cannot stop whatever is already written in our destiny. We pray to God to give her strength and courage for this tragic loss.
LikeLike
You are so right. We do not know what God’s master plan is, and we cannot change it, but we can try to get something positive out of it by helping others.
LikeLike
Just found you on Blow Your Own Blog-Horn .So heartbreaking to read .Thank you for raising awareness .Our thoughts are with your friend xx
LikeLike
Thank you so much for your kind comments Claire and for stopping by to read this.
LikeLike
I have no words for how horrendous this loss must be for your friend and for you grieving with her. Thank you for this post.
LikeLike
I know, I cannot even begin to imagine what it must be like to lose a child, let alone in these horrible circumstances. Words are not enough, but we can all be there for her.
LikeLike
So sorry for your friends loss. What a terrible tragic story and such a beautiful little boy. x
LikeLike
Thank you so much Xandi for your comments and for helping spread awareness on twitter. It is hard to get Max’s picture out of my head…
LikeLike
Heartbreaking story, but one that must be shared. My heart goes out to his family x
LikeLike
Thank you for taking the time to read this. It would be great if you could share this with any other parents that you know. I will pass on your comments to Caroline.
LikeLike